Thursday, May 3, 2012

"Our Weekend Without Meds"


The most common question I am asked about Adult ADHD (other than "Is it real?") is this: "Does the medication really make a difference?"

I used to recite the facts and figures. After all, double-blind research should provide rock-solid persuasion that yes, for some people with ADHD, the medication is positively life-changing.

Wrong. After only a few times of watching eyes glaze over during my recitations, I got wise: I started answering the question by sharing before-and-after stories of real-life adults with ADHD.

As one of my college journalism professors used to repeat: "Show, Don't Tell." In other words, don't tell your readers what to think by laying out tedious facts and arguments; instead, provide richly detailed stories and let the readers decide for themselves.

With that in mind, I offer you this "as told to" tragicomedy from a friend named Jason about the weekend that Robert, his partner, ran out of medication. (It's not a typo; Jason and Robert are both men, a reminder that ADHD's effect on relationships is not a "Mars-Venus Thing" and that ADHD does not discriminate on the basis of gender, age, or sexual orientation.)

It's important to note that Jason did not know Robert before he was diagnosed with ADHD and started taking medication. In fact, he had assumed Robert was making "too big of a deal" of his ADHD by taking medication. This "lost weekend" made him a believer.

It seemed like no big deal when my partner, Robert, said he’d forgotten to call his doctor and would run out of medicine over the weekend. "I'll just pick it up on Monday, no problem," he’d said. With hindsight, I should have packed a bag and gone to Vegas. He missed only three days’ medication but the downhill effect was dramatic.

I first noticed the difference on Saturday when it took him three hours to pick up cleaning supplies. On Friday, he’d planned to clean out his home office on Sunday. Unfortunately, he made the plans while on his medication and the event took place while he was off.

Sunday I sat down to enjoy some basketball games on TV in peace while Robert cleaned the office. Eight hours later, he asked me to come see how it looked. I didn’t know what to say. Yes, the office was cleaner. But the hallway was lined with junk and massive quantities of cleaning supplies.

Then he checks his e-mail. Two hours later, at midnight, I wander in to tell him goodnight. He is staring at the computer. I asked him what’s the matter. "I don't know." He is a born geek. Turns out, his PC was fine. He couldn't remember what he was trying to do! It wasn’t easy, but I finally got him to recognize it was because he had not had his medication in nearly two days.

On Monday, he found out that he couldn't get the prescription until Tuesday. He spent the evening on EBay shopping for things we didn’t need. Tuesday morning, he asked me to pick up his prescription; he didn’t have time during lunch hour. But he’d transposed two numbers in the address, and without the doctor’s name, I couldn’t find the office.

Luckily, he went by after work, got it, and had it filled. But he’d gotten lost trying to find his own doctor! He called me for directions, extremely frustrated and blaming me because I couldn’t find the doctor’s office earlier. Huh? He slammed down the phone, saying he would call back.

Two hours later, he arrives. When I asked why he hadn’t called back—I was worried— he didn't remember saying he would call. Where had he been for two hours? “Shopping.” But all he had in his hands was the prescription. "Oh, I forgot the things in the car.” He brings in groceries and more of the same cleaning supplies he purchased Saturday! Now, we have two of everything, including the world’s largest bottles of Simple Green!

When we finally got the air cleared over who was responsible for him being lost, we sat down to relax by watching TV. He picked a show about terrorist training. After all the bad news on this topic, not to mention the last three days' tension, I didn’t consider that relaxing. “But it’s really good!” he insisted.

After 20 minutes of watching him “self-medicate” by seeing torture victims suffer atrocities, I said, "No, I don't want to watch this," but he stubbornly left it on. I left the room. He said, "If you don't like it change the channel!" He had forgotten that he was holding the damn thing in a death grip. Argh!!!

He took a dose of the medication this morning. Hopefully, we will be headed back to a more even keel shortly. Hopefully, he will remember to fill his prescription next time before he runs completely out. In fact, I think I’ll put it on the calendar.

How about you? Can relate to these examples? Do you have others to share? What's the biggest difference medication has made in your or your partner's life?

Tuesday, April 3, 2012

ADHD and "Cyber Junkies"

Once my boyfriend starts on the Internet, there's no turning back. It seems the perfect trap for people with ADHD: He can drift aimlessly from topic to topic with just the click of a mouse. I just wish he could use all that internet time for something useful.   –Beth

My wife was supposed to turn in her masters-thesis outline by Tuesday. After doing nothing for six months, she worked at the computer all night in a last-minute attempt and still spent half the time playing games on Facebook. I think a typewriter would have presented fewer distractions.
  –Marco 

My husband seems very addicted to the computer.  Ours is downstairs, and if I ask him to get something from down there it takes him 20 minutes because he stops to play a game or do some "social-networking." When I finally call down to see what is taking so long he yells back in anger. He was addicted to porn at one point. Who knows. Maybe he still is.   –Kim


It's not only the partners of adults with ADHD who report concerns about computer addiction. The adults themselves  curse electronic gadgets' mesmerizing hold over them. In this previous post, for example, Glen says he staves off sleep by scanning every news headline worldwide on the Internet. And he is not alone.

Clearly, many of us recognize this potential problem. But what to do about it? Below, national cyber-addiction expert, author, and support-group leader Kevin Roberts offers pro-active strategies.
                                                                                     –Gina Pera                                    

Are you a Cyber Junkie? 

Five Steps to Take Back Your Life

 

By Kevin Roberts

Author and cyber-addiction expert Kevin Roberts
Do you, like many adults with ADHD struggle to regulate the amount of time you spend online?  Has “social networking” on Facebook turned into real-time isolation?  Is the cyber world sabotaging your chances for success and happiness? If these questions hit home, you’re not alone.

I am an ADHD adult who also suffers from anxiety.  In addition to these challenges, I spent 14,000 hours over ten years wasting my life on computer games, endless Facebook sessions, and random Internet surfing.  The problem is now under control, but it is a daily effort to keep it that way.

We know that somewhere around 50 percent of untreated ADHD adults will, at some point in their lives, turn to substance abuse.  Data has started to mount that an even greater percentage of people with ADHD struggle with excessive, or even addictive, use of the cyber world.  In both cases, people who do not get treatment usually attempt to self-medicate, meaning that they engage in substances, or behaviors, that temporarily ease the discomfort or the disorder.

Tuesday, March 6, 2012

Reaching Out to Your Community

How can we best reach adults with ADHD who have no idea they have it? Based on my 12 years of advocacy, I'd say it is through people with ADHD talking about it openly and honestly with others in their day-to-day communities. In this way, others hear the facts about ADHD from people they already know instead of thinly drawn profiles in the media.

I jokingly refer to our Adult ADHD CHADD group in Palo Alto as  "ADHD without Borders," because the meeting routinely draws transplants from many countries, including China, India, Vietnam, Israel, Germany, and Brazil.

These people often express great relief to finally find a group who understands them, because their friends and family back home typically do not. Realizing the genetic connection, they cannot accept that ADHD is an "American invention." They clearly see that extended family members also have ADHD and they need to be educated. They vow to take the message back home and put ADHD in a context their friends and family can understand.

Tuesday, February 7, 2012

Q & A: When to Disclose – And More

Dear readers - I hope you like this blog's new, cleaner design!

A few years ago, I participated in an Ask the Expert Chat on "ADHD and Relationships", sponsored by the National Resource Center on ADHD. In this free forum, the public is invited to ask questions of a top ADHD expert in a live online chat. This text-based Q&A is later stored in the CHADD Ask the Expert archive (you can view the topics at that link but access is limited to CHADD members). Participants had so many questions, we had no room for the overflow, so I am sharing them here.

Question: When beginning a new relationship, at what point do you suggest disclosing that you have ADHD and what is a good way to do it?

Hi Rebeca,

Well, I wouldn’t mention it on the first date!  Or perhaps even the third or fifth.

I’d give the person time to get to know you first, so you can avoid the risk of letting that person’s possible misconceptions about ADHD filter perceptions of you. 

Then again, if despite your best efforts, you still have a tendency to “blurt” or “mishear” or some other common ADHD-related trait, it might be good to provide a little education first, so the person won’t misinterpret your behavior as, for example, rude or uncaring. Even then, though, you don’t have to say “I do this because I have ADHD.” Because, again, you don’t know the person’s level of understanding of ADHD. Instead, you can say something like this: “Sometimes I have trouble arriving places on time. I just want you to know that if I’m ever late to meet you, it’s not because I don’t care. I’m working on strategies, but sometimes I slip.”