Sunday, August 30, 2009

Is It "Miscommunication" -- or Could It Be ADHD?


With a warm smile and a kiss, Diane welcomed fiancé George at her front door and then noticed fresh mud on his shoes. In a pleasant tone of voice, she asked, him to please leave his boots on the stairs? Puzzled, he said, "Your suits stare? Huh? What on earth are you talking about?" Despite her clarification, George remained convinced that Diane had said exactly that. Moreover, she'd said it with that tone (presumably, the disapproving kind).

It wasn't this pair's first tangled communication. In fact, it happened so often, George had his hearing checked but it seemed fine. Their couples therapist suggested that George might bear deep-seated psychological resistance to listening to Diane.


Can You Hear Me Now?

Fortunately, George's ADHD diagnosis came just as these "miscommunications" reached fever pitch. He and Diane felt relief when the cognitive therapist explained how ADHD has a common traveling companion called Central Auditory Processing Disorder (CAPD). Briefly, it can cause a person to misinterpret content and even tone of voice (more details about CAPD in a minute).


The therapist provided the couple strategies for enhancing communications, noting that stimulant medication can often help "strengthen the signal." 
What signal is this? The one that travels from Point A (the ear, where sound waves enter) to Point B (the brain's auditory processing cortex, where sounds are interpreted and given meaning). (See illustration below.)



This journey is made possible thanks to brain chemicals called neurotransmitters. If certain neurotransmitters are in short supply, messages won't get through or arrive intact. (It's sort of like using a dial-up modem when you're trying to transmit a big  file: Data-corruption happens.)


In addition to weak signal strength, consider other ADHD-related neurobehaviors that might be contributing to your Tower of Babel Twosome: Distractibility, inattention, poor working memory and even difficulty reading social cues, including facial expressions. As one young man with ADHD put it (in a video produced by ADHD educator Chris Dendy): "It's like living life listening to people speaking a language that you don't understand, with no translation available."

The stress of knowing that communications are going badly only makes things worse for the adult with ADHD, especially when it comes to talking about personal issues, according to my friend Carl, who along with his wife was diagnosed eight years ago. "With stress, ADDers tend to get 'brainlock' and realize there's no hope of expressing themselves and having a 'real' conversation the way you want," Carl says. "So, they frantically search for the right thing to say to make it go away, since they can't express what they're really feeling. They can't even define or focus on what they're feeling, let alone talk about it to anyone else."


Then there's my friend Mary, who is heartbroken about the state of her marriage: "I just don't know how to talk to my husband anymore. If we make an agreement, he forgets it or complains about it, makes an excuse to break the agreement, or accuses me of remembering it incorrectly."


An Ears-On Demonstration

Recently, I attended a lecture where a psychiatrist (who both has ADHD and treats it) demonstrated how ADHD can challenge one's ability to retain verbal information. First he asked for a show of hands from everyone diagnosed with ADHD or entertaining the possibility. The entire group of about 25 raised their hands. Then he reeled off a short bio (note: details have been changed):


“My name is John Michael Smith. I was raised in Philadelphia, Pennsylvania. Later, I attended medical school at the University of California, Los Angeles. Now I live in Palo Alto.”

“Okay now,” he said. “Who can tell me my middle name?” Two raised hands.

“Who can tell me where I attended medical school?” One hand.


"Where do I live?" Six hands shot up. (It might have helped that the meeting was held in Palo Alto.)


“Who can tell me where I grew up?” Two hands raised, tentatively.

"So you see," he concluded, "when you think you are having communication problems, what you are possibly having is a hard time remembering details from one sentence to the next."


CAPD and ADHD: One and the Same?


Given all this, I can't figure out why these challenges are commonly identified in children as CAPD yet when it comes to adults with undiagnosed ADHD, the challenges are typically called ….
what exactly? Passive-aggression? Obstreperousness? Oppositionality? Sometimes. Until you grow old enough to be evaluated for hearing problems and fitted with a hearing aid. Trouble is, your "hearing" might be just fine.

Read these characteristics of CAPD (from the
National Institute on Deafness and Other Communication Disorders), and notice how similar it is to ADHD (some experts doubt that these commonly co-existing conditions are, in fact, separate entities):

• Has trouble paying attention to and remembering information presented orally

• Has problems carrying out multi-step directions

• Has poor listening skills

• Needs more time to process information

• Has low academic performance

• Has behavior problems

• Has language difficulty (e.g., they confuse syllable sequences and have problems developing vocabulary and understanding language)

• Has difficulty with reading, comprehension, spelling, and vocabulary.


In this short blog post, I've touched only the surface of how, when it comes to ADHD, hearing well doesn't always mean being able to listen well.

Listen Up! Sound Strategies for Clashing Couples

Some couples find these practical strategies useful.


For Partners of Adults with ADHD:
• Turn off distracting noises before speaking (TV, radio, computer, etc.).

• Touch your partner and make eye contact before speaking, allowing sufficient transition time.

• Ask your partner to repeat what you’ve said, to make sure it was understood.
• Speak simply and concisely without a lot of superfluous background detail, whys and wherefores, etc. (granted, this is not always possible for more complex communications).

• Don’t discuss important matters “on the fly”—while your partner is involved in another necessary activity or as you’re going out the door.


For Couples:

• For some topics, e-mail works best. The ADHD Partner has time to focus, reread, and mull over a response without feeling the pressure of needing to respond immediately.

• Take a walk together when discussing important issues (exercise activates blood flow to the brain and alleviates stress).
• Use a whiteboard at a household “command center” to target 1-3 important
messages, simply stated.

For Adults with ADHD:

• Recognize what good listening means for your partner: that you
value his or her opinions and care about your partner.
• Listen first. Respond second. Exert the extra mental effort to really listen. Set aside what you were just doing, what you will do when your partner finishes, your response, or unrelated topics. If you need more time to shape a response, ask for it.

• Use relaxation techniques to clear your mind before having important conversations.


When Symptoms are Moderate to Severe

Sometimes, strategies are simply not enough; medication might prove most helpful in kicking the "transmission signal" up a few notches. Consider this before-and-after story:


"My boyfriend has been taking a neurostimulant medication for about a month now, and the biggest difference we've noticed is that we are able to discuss things without the big explosions of emotion. He's much less dramatic in his expressions of self-hatred or anger, which we've learned came about mostly because he was losing focus and subconsciously boosting adrenaline to re-capture focus, plus feeling badly that he couldn't keep paying attention. He used to lose the thread so quickly and then automatically go off on a more stimulating (to him) tangent, leaving me in the dust and getting angry if I tried to bring him back to the subject.

"Mind you, previously our discussions wouldn't be particularly demanding of most people; they were normal discussions that couples have every day.
Now he's no longer stomping out of the room mid-conversation to sulk. No more 'misremembering' later the agreements we made. No more going completely silent while ignoring what I'm saying because he's busy obsessing about how he's such a terrible person and how he's letting me down."

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Can you relate? Can you share some strategies? We'd love to know about them! Please share your comments below.


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Note: Psychologist Arthur Robin and I will present a workshop on October 10, called,
"Relationships: How To Succeed in Marriage with AD/HD" as part of the Annual CHADD conference taking place in Cleveland in October. I hope to see you there!

And, to the kind gentleman who introduced himself to me at the CHADD Anaheim conference as a fan of this blog, thank you so much! Wonderful to meet you! And please keep passing along Adult ADHD awareness to your friends. :-)

Gina

32 comments:

posting generally done by Julie's sister said...

Your postings are very helpful, and for me, "right on," (as we used to say in the previous century.) Thank you for your insight and clear communication.

Graham H. said...

Gina your blog is ABSOLUTELY AMAZING!!!!! I am signed in ubder my son's name ~ sorry will fix that later!


Congrats!! You are so smart!! I LOVE it!!

Anonymous said...

I can relate. My son often misinterprets words. Before my diagnosis, my behavior was "explained" by psychologists as neurotic and dysfunctional - rather than an aspect of how my brain works. There is a difference. I can't learn well listening to lectures in classrooms. Instead I focus on what I can see: I read, look at pictures, and physically try to do things to see how they work.

Dawn said...

I just found your blog today thanks to the CHADD email I received. Spot On!! We have had issues with my 7 year old for years. He has now been on meds for about 2months but the miscommunication story tickles me. Just today we were talking about Baptism and he said "your back tires"...I slowed down my speech but he could not grasp why God wanted anything to do with your back tires. LOL...he brings me joy in so many ways. Thanks again!

Linda said...

Gina, my 12-year-old daughter was recently thoroughly tested by a psychologist. He did not believe that she displayed the distractibility typical of ADHD, she doesn't have behavior issues, she hasn't shown signs of low academic problems, she doesn't seem to have the described language difficulties, and she is a good listener. She does, however, exhibit the other characteristics listed and I have also had her hearing tested for the same reason as described in your example. Is it possible for an adolescent to have CAPD without ADHD? The problems that she is having just seemed to be apparent about 1 year ago.

Linda Lawton said...

Important to note that people who have these auditory symptoms are often exhausted by the effort of listening. Escape from "noise" can take many deceptive forms. Some people enjoy playing interactive computer games because they can socialize successfully without having to listen. (Many teens with AD/HD have been accused of fixating on these games when really it's their only comfortable medium for social contact). Others may vanish from the family scene in the evening because they need silence. Large gatherings like family holidays or parties can precipitate meltdowns, self-medicating, avoidance (like two hour trips to pick up ice or watching football when everyone else is socializing). One of my clients had a dramatic response to medication and was amazed: "I can finally follow a conversation at the dinner table!". It was a great example of how medication can help your real personality come forth. This woman, who for her whole life had appeared timid and reserved, found that she had a great sense of humor when her timing was reset and she began to enjoy being the center of attention!

Flutterby said...

Gina, this is a great site and I'm so happy to have found it! Actually, it found me! Today, I finally became a member of CHADD at www.CHADD.org , the website for children and adults with ADD. A few hours after joining, I received an email with this blog! I have to say that finding your blog has already made the membership fee more than worth it! This most recent posting will be very helpful in reinforcing what I have been trying to explain to my husband about my confirmed and his undiagnosed ADD/ADHD. The other postings are very interesting as well. I am so relieved to find that I am not alone in experiencing many of these same challenges, after just recently being diagnosed as an adult. I think it will also be helpful to my husband and others who are afraid to acknowledge that they are affected by ADD/ADHD because they mistakenly believe that it only affects kids or because they are afraid of being labeled as having "a problem". It's wonderful to have someone taking the time to share this information and these stories in away that is intelligent, unintimidating, and so easily accessible. It's perfect for those of us who don't have the time or attention span to read a book about it and also reassuring and helpful to read the comments to know we aren't alone in our experiences with ADD/ADHD. I am already looking forward to your next posting! Thank you!

Nancy with ADHD spouse said...

When I read "it can cause a person to misinterpret content and even tone of voice" I said "Thank you, thank you God!" I have been questioning how I talk to my husband, thinking I must be unconsciously using a tone of voice that is opposite to my feelings. He won't take medication for ADHD because he says that it is bad for his high blood pressure. He used to take it, and our communication was so much better.

Lynn said...

Gina

Thanks for this important post. I'm going to have my wife read so that she better understands what I'm going through.

Lynn

Scott Hutson said...

Gina,

As you know already, my story. I can show example of the truth about location in the brain of,as described by my Neurosurgean after MRI.

Abstract incoming speech(the best way to explain to me)is one a symptoms of the damage shown on the largest leison on MRI. Exactly where the arrow on the brain picture above is pointing.

Scott.

kadamz said...

Gina - So right on and so helpful. Can't wait to hear you speak in Chester County PA in two weeks!

Dafina said...

Gina, thank you so much. This entry is particularly relevant - I very much identify with the guy in your opening scenario: I've been seriously considering asking my doctor if I can get a hearing test because I constantly struggle with "hearing" correctly what people are saying. I'm constantly asking my daughter and partner to repeat themselves. I don't notice that I misinterpret tone or expression, but jumbled sounds that I just can't understand are a serious impediment to my communicating with others! Thank you for helping me see there might be another way to understand and make sense of my problems. I just got diagnosed with ADHD in February of this year. Your blog really helps me. Thanks again.

18 Channels said...

This is funny...this sounds like my allegedly non-ADHD partner (I am the ADHDer in the relationship).

Me, I was diagnosed as an adult and before diagnosis had already adapted to using written communication for anything important, and writing down instructions from employers in order to eliminate confusion...seems I might have "coped" my way around this without even realizing I was having a problem ;) Or this just isn't me...but it's soooo my sig other that I'm laughing right now...he gets confused, I get impatient, then pissed because I think he's trying to be an ass, then he gets totally flustered because he's stressed and really has no idea what I'm talking about...finally one of us will go "wait a minute...this conversation just went allll wrong..." and we work to get it back on track.

Anonymous said...

My wife and i had a long talk about my poor listening this morning. How timely.

Bob G said...

Really appreciate this blog; I see myself in almost every symptom description. Have an ADD diagnosis but unfortunately, the meds I've tried don't do much to improve the symptoms but do make me irritable. So, I just explain to close friends what's probably going on and muddle along...
At least this blog provides some comfort that my struggle isn't unique.

Anonymous said...

You have described my social and communicative difficulties exactly. I have ADHD but also have CAPD- not independently diagnosed but a neuropsychologist/ psychotherapist I had been seeing for years, knowing I had ADHD thought so. But I understood it was in addition to ADHD , I assume from your article that one can have CAPD without ADHD. What relatively lucky people they are!
I wonder if the condition makes it hard to communicate effectively (words AND tone of voice). I've often been misinterpreted, even as a young child, as being angry when nothing could be farther from the truth. Maybe a child
just learning to communicate copies what she sees as communication from
family members with CAPD? If so, that would double the difficulty.
I want to say I identify very strongly with the self- blamers mentioned above.

Scott Hutson said...

Gina,

I was just reading last night about "Traveling Companion" in your book. So many subjects about ADD in there. I am learning and seeing the "Big Picture", 1 picture at a time. I see some things I wish I could have seen long ago.

I'm almost afraid to show these things to my wife,or I should say..let her know I can see what see already knows. It can be hard to see the truth about myself sometimes. No pain, No gain. You tell it like it is,and I have become better...1 picture at a time. This blog and your book are great!!

Scott.

Anonymous said...

WOW AND ALL THIS TIME I THOUGHT IT HAD SOMETHING TO DO WITH IQ. IN UNIVERSITY I GET TOP GRADES, HOWEVER, RETAIN VERY LITTLE. THERE'S NO POINT IN GOING TO CLASS. I HAVE TO READ, REREAD, WRITE AND REWRITE UNTIL THE INFO.IS ENGRAINED OR MEMORIZED (ONLY TO HAVE IT LOST AGAIN AFTER EXAMS). MY HUSBAND HAS ADHD AND POSSIBLY MYSELF. I'M BEING TREATED AS SUCH. THE MEDS DON'T HELP MUCH, HOWVER, IT HELPS MY MOOD AND SOCIAL INTERACTIONS GREATLY. MY HUSBAND AND I ARE FOREVER MISREADING ONE ANOTHER. HE'LL TELL ME TO STOP SOUNDING SO ANGRY AND YELLING...WHEN I AM NOT. IT'S FRUSTRATING AND IT'S HARD TO FOCUS ON FOLLOWING SUGGESTIONS TO HELP IMPROVE IT. I GET BOGGED DOWN WITH THINKING ABOUT WHY OR HOW TO PROCESS INFORMATION AND RETAIN IT AND SO I TAKE IN EVEN LESS :}. WHEN MY HUSBAND SPEAKS TO ME IT HAS TO BE SHORT AND SWEET, EVEN THOUGH IT SELDOM IS, OR ELSE I'M GONE TO SOME OTHER PLACE. I CAN GO ON AND ON BUT MOST OF YOU WILL PERHAPS NOT READ THIS ONCE YOU SEE IT'S LENGTH LOL.
NOW I NEED TO GO BACK AND READ THIS ARTICLE A FEW MORE TIMES.

Anonymous said...

Wow - that was right on. I too had a hearing test and all was fine. The audiologist actually told me to listen to my wife. I do listen but find it VERY hard even with ADD meds. The suggestions are great to help. She likes to talk in the car but I find it even more difficult to listen and respond when driving.

ck

Auditory Processing Disorder Support said...

Excellent article! More information like this needs to get out to people with ADHD. Our son has CAPD. It was thought he had ADHD as well, but as we've done therapies to deal with his vestibular issues his hyperactivity has reduced dramatically. We've put in a lot of accommodations in the classroom to help with CAPD, and his attention/fidgiting issues have nearly dissapeared. It's been an effort, but well worth the result. Schools don't consider CAPD a learning disability, which is really unfortunate. I think many kids who are considered "behavior problems" may have this type of issue, and the schools need to do some research on it. Our son is the first kid in his school to ever have CAPD, and I can hardly describe the trouble we went through to get them to listen about it. Particularly love the diagram of the auditory nervous system. I'm going to link to your blog from the CAPD site I built. Thanks!

Anonymous said...

Thanks for posting this! My husband actually asked me to get my hearing checked. He was convinced that I had soemthing wrong with my hearing or was intentionally ignoring him. Needless to say my hearing is perfect and I certainly never intend to just ignore what he is saying. Texting on our cell phones has helped our communication trememdously. I don't feel as angry and misunderstood.

Anonymous said...

I need to learn more about both of these conditions. I have a husband and daughter that suffer from both and it is driving me crazy. I am at my wits end.
I agree with texting helps make communication much easier. My daughter and I communicate wonderfully but my husband continues to be my biggest challenge. I am exhausted!

Scott Hutson said...

Your comment"I am exhausted!" I'm an ADD husband. When I read that, a while back, and when my wife got home from work(she usealy goes to our room and reads before going to sleep), I told her about your comment.

I asked her if she could relate to you, and does my rambling way of talking exhaust her. She just looked at me and smiled, and said:"Yep, your learning." Then I went on to say some things about how Gina's book helping me, and before ya know it, I had already gone to a different topic, that I thought was very interesting about the way the brain works(or something like that probably).

Then she raised her hand like a student in a class-room, trying to get the attn. of the teacher. I stopped talking, and looked at her, and she could tell by my facial expresion, that I realized what I was doing.

We both started laughing, I gave her a kiss goodnight, and went in the living room, and started reading Gina's book, from the point where I had one the cool bookmark's that it came with.

That book is not just for non ADD'er for sure. It's for me.

Gina Pera said...

Thanks to everyone for your comments. I learn so much from you, and appreciate the interchange.

Gina

two bits said...

I was diagnosed with ADD at 17, but got by without medication. I had my hearing tested in college because I was contantly misunderstanding my friends, but my hearing was fine. I had it tested again 10 years later because my husband was so frustrated with me misunderstanding him or flat out hearing gibberish instead of whatever he was trying to say. My hearing is still fine and we have been fighting about this issue for months. He says I just don't listen hard enough. The opening paragraph of this article sums it up perfectly. Too bad a suggested method of communication for couples with CAPD is email or a whiteboard, as my husband is dyslexic and hates to read/write if at all possible. The universe has a sense of humor.

Gina Pera said...

Sounds like YOU have a sense of humor, too, two bits. :-)

Somehow I think "trying harder" to listen is like "trying harder" to see -- more easily suggested than done. :-)

g

Anonymous said...

I came across your blog last week while trying to find help with coping with my boyfriend's ADHD. It has helped so much already and I'm learning more and more everyday how to renew my patience, which I thought had been completely exhausted long ago. I'm still struggling every day, and afraid of how to get him help, but your entries are helping me start walking down that path. Hopefully, soon enough he'll be walking beside me. I'm at my wit's end, so I hope learning more will help our relationship. I love him so much.

Anonymous said...

I wish I had found this long ago! I was diagnosed with ADD after my wife left me and I was seeing a marriage councilor. The councilor saw many signs and asked me to get screened for ADD. My wife refused to go. Many issues I have discovered were affected by my ADD. I always am saying what but my hearing tests fine. She would want to talk about our relationship. I wanted to help it, but came up with no words. She felt I didn't care. That is not true. She still means the world to me (and we've been apart for about 3 years).

I am still learning about my ADD and how to cope better. I have been scared to try meds, but am seeing my doc next month about trying them. Its to late for my marriage, but I hope it helps with other parts of my life.

I hope this article (and blog) can help others save their marriages and help non ADDers understand.

Gina Pera said...

Anonymous(1) -- I'm glad to hear you've found your second wind. Sometimes the "light at the end of the tunnel" is learning about ADHD and how it can manifest in adults.

.When you can finally stop tying yourself in knots through fruitless attempts to "manage the unmanageable," when you finally have solid answers, it can make all the difference in the world.
Good luck!

Gina Pera said...

Anonymous (2)

I'm sorry to hear that your wife wouldn't support you in being evaluated for ADHD. I'm constantly amazed by the people who refuse to consider new ideas, even if they could vastly improve their lives.

Maybe your wife was depressed and not thinking clearly. Maybe she was just weary from riding the ADHD Roller Coaster. ;-) Maybe she just wasn't very intellectually curious or even empathic.

As for you and your fear of medication, I can understand people being cautious about approaching medication that can affect one's brain -- or any medication. That is the sensible thing to do. Especially given all the fearmongering on the Internet about medications AND given the many true reports of bad side effects, etc.

The fact is, for some people medication can be truly life-enhancing. But it's not the "quick fix" the propagandists criticize it as. It requires educating yourself before you even select a prescribing physician, so you select wisely. And it also requires being an advocate for yourself.

Keep educating yourself!

Gina

Anonymous said...

I just can say WOW, all this was so new for me. I think a few days after we started dating my Boyfrind told me that he "HAD" ADHD when he was a kid, but the way how he is akting sometimes made me wonder, so i did some research and i found a lot about ADHD and Adulds, and now everything makes so much sense to me. I tried so hard to understand him, but he got me frustraded so many times. He explained why somethings happend, but it didn't made any sense to me because i thought "Why is it so hard to listen?" or "I just told you, how can you forget so fast?" .. the list goes on and on. But now i have a big smile on my face and i know it is nothing against me i just have to change some things and we will find a way to get through this, without blaming and fights. Thank you so much

Gina Pera said...

AN UPDATE:

The confusion between auditory-processing disorder, or APD, (often diagnosed in children with ADHD) and ADHD has long been a pet peeve of mine.

Many people simply do not realize how even very educated specialists have immense blind spots. And, to me, APD vs. ADHD seemed a gaping blind spot.

I carefully studied all the research. And, even though I don't have a PhD, I do know how to read and process information.

Recently, a question was posed about APD on Medpedia, a website where the public can ask questions on sometimes complex medical topics. Selected contributors, including those with MDs, PhDs. and other advanced degrees, answer those questions. Based on a points system, contributors are ranked.

Despite having no advanced degree, I am currently the #2 contributor. I try to do on MedPedia what I've done in the ADHD community for years -- synthesize sometimes-complex information and bridge disciplinary gaps in terms most laypeople can understand.

I was a little nervous about my answer on APD, just waiting for a hearing specialist to take issue and ask, "who are you? You have no medical degree!" lol!

Then today I opened the current issue of The ADHD Report and found a in-depth discussion of APD vs ADHD, with essentially the same conclusion I'd drawn.

You can read about it on Medpedia:
http://tinyurl.com/26gjtum

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